I lost my wife of 34 years, the mother of my two sons. Sara was a humanitarian, a consummate professional in her chosen field of speech pathology, a superb hiker and a beloved friend.
We Live with ALS

We Live with ALS

I support the ALS Network because they fight for a cure of ALS on my behalf. The ALS Network offers support groups for pALS and cALS, and educational and exercise classes. Last year, my niece, Anita Bailey, coordinated a group of family and friends for the 26th annual...
The love and hate of a devastating disease

The love and hate of a devastating disease

I am a woman, a mom, a scientist, and a researcher, and as such, find the complex processes that neurons use to defend themselves against threats simply fascinating. I feel privileged to spend my work day thinking about how these processes might be connected, and how...
“Never Give Up. Never Surrender.” – Galaxy Quest

“Never Give Up. Never Surrender.” – Galaxy Quest

For a year we watched Gary’s (my husband) health slowly decline. When we first noticed symptoms, we thought it was just the aging process. It wasn’t until he fell for the third time that we began to seek medical help. There are many steps you have to go...
Creating Hope

Creating Hope

My brother Mike was diagnosed with ALS at the age of 47. He lived in Nelson, NZ with his young family, including a 4 and 7 year old. NZ has great safety net healthcare, but did not have any real specialized care for patients with ALS. He was really left alone to deal...
ALS Network
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